Genre: Science Fiction
Short Story Type: Short Story
Summary: Kyle Ameus Waterbey is afflicted with a hideous illness. He would do anything to be rid of it. Anything.
Kyle suffers from neurofibromatosis, a crippling disease most famously associated with the Elephant Man. When a shady medical practitioner offers Kyle a chance to cast off his deformed appearance forever, he accepts without a second thought. But does Kyle truly understand what this new treatment will cost him?
This story has won a Phobos Award and the Vera Hinckley Mayhew Award.
Excerpt:
Kyle would not usually have examined the small office as he entered it. Twelve doctors, thirty-seven surgeries, and sixty-three consultations had long ago convinced him that one professional’s abode was more or less like another’s.
When Kyle was four years old, doctors had terrified him. He remembered the bushy eyebrows and deep-set eyes of Dr. Rells, his first surgeon. When Dr. Rells delivered the anesthetic before the first operation, Kyle had felt like the victim of a mad scientist about to perform an experimental surgery. He was afraid he would wake up and find that his brain had been removed by accident.
By age nine Kyle had changed surgeons five times. Names and introductions slipped past him unnoticed, and his emotional response to surgery changed from trepidation to disinterest to annoyance. His scars multiplied more quickly than the candles on his birthday cakes.
Kyle’s friends soon lost interest in the story behind each new bandage and suture. His enemies never lost interest in mocking them. The school bully liked to knock him down and poke at the fleshy lumps growing on his back. Kyle’s private vision of hell looked like a middle school locker room.
Once he had been proud of his deformities. Now he despised them. The malformed right hand that the most expensive surgeries could not repair; the ever-so-slight limp when he walked because bone surgery left one leg slightly shorter than the other; the fleshy, purplish bag of flesh on his left side that the doctors had not yet removed — these were the devils that tormented him night after night. Sometimes the tumors on his nerves pinched so tightly that he could not walk, but it was not the pain that kept him from sleeping on hot summer evenings. It was the specter he saw in the mirror.
The night before his twelfth birthday he got out of bed at two a.m. He stood in front of the full-length mirror on his bedroom door for three hours, staring at the discolored landscape that should have been a human chest. Hundreds of spongy, cauliflower-shaped tumors poked from beneath his flesh. Most of the lumps were the size of a marble, but some were as large as golf balls. Scattered on the skin between the tumors were dark brown patches on his flesh. They were called “cafĂ© au lait” spots: the trademark symptom of neurofibromatosis. That night Kyle did not consider suicide. But he smashed the mirror and went to bed with his fists still bloody.
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I love your title. Very catchy =)
ReplyDeleteIf you wanted to make a book about Neurofibromatosis make it NON-FICTION not science fiction
ReplyDeleteNon-fiction means that everything in the book is based on fact and actual events.
ReplyDeleteA fictitious character would already push the book from the non-fiction to the fiction realm. If the method of treatment described does not exist it would, in fact, be science fiction.